More Answers than Questions

Yesterday I saw the rhuematologist and got the results of the many blood tests and hand x-rays I had on my previous visit. This appointment was with the main doctor (Professor Smith), and not the registrar. He’s a really nice man. Most of my blood tests were normal (yay!) but a couple weren’t, and they were the important ones. One of them was for ‘inflammatory’ markers which was way elevated – meaning I have a great deal of inflammation going on with my body. That I knew without needing a blood test to tell me, but it’s important that the doctors are aware. The second one showed that I have a certain kind of antibody in my blood that goes off and attacks other things in my body for no good reason. This antibody attacks the moisture producing glands through out the body.

It’s called ‘Sjögren’s syndrome’, and is a chronic autoimmune disease in which people’s white blood cells attack their moisture-producing glands. It’s pronounced ‘Show Grins’ which is oddly ironic considering one of the things it causes is dryness – including lips, skin, mouth, eyes, sinus, etc. The syndrome is named after the man that first identified it in 1933 – Dr. Henrik Sjögren.

Sjögren’s can affect internal organs as well because almost all of our internal bits either produce or make use of various types of moisture. There are two websites that I found interesting in my search for information. This one has a chart of the body with a few of the areas that can be affected: http://www.sjogrens.org/home/about-sjogrens-syndrome/symptoms and this other one is a more text based list of issues with the percentages of people with this having the particular item(s):http://www.medifocushealth.com/RH011/Introduction-to-Sjogren-s-Syndrome_Signs-and-Symptoms-of-Sjogren-s-Syndrome-print.php. Actually, backtracking on the last site since I noticed that it was a ‘print’ page, the whole site is rather very detailed: http://www.medifocushealth.com/RH011/Introduction-to-Sjogren-s-Syndrome_… Interesting reading.

The reason I named this post ‘More Answers than Questions’ is because after reading and looking into things, a whole lot of my weird health stuff can be attributed to Sjogren’s. (I’m so proud – I just typed that without looking and got the spelling right). Even my weird nerve-sensation thing where you touch me in one spot on my back and I feel it in another place is covered. My voicebox issues with being hoarse when I was a kid and the months-long times I’ve been hoarse as an adult. My cough that isn’t bronchitis, all the sinus issues I’ve had, losing my teeth, strange rashes, etc. Explained. OK, so I know it’s not the best thing in the world to have, but it’s not likely to kill me (unless I get serious internal complications), and it gives me answers to the weirdest stuff about myself. It’s better to know the cause/reason, I reckon.

I’m on a new prescription that’s for rheumatoid arthritis, lupus and malaria … it’s an anti-inflammatory but it takes about six months before I’ll see any improvement. When we do see improvement, they will be taking me off Fenac, which is what I currently take for my arthritis. In particular it’s important to get me off the Fenac because the longer I’m on it, the more likely I am to have any of it’s various stomach related side-effects. I’ve been taking it for about 3yrs now if memory serves me correctly.

It’s interesting that going to the doctors for what I thought was an ear infection has resulted in finding the ‘key’ to so many different issues. So it’s not good news, but I am glad to have some answers finally. I’m still weird, but now at least I know why. 🙂

Hits: 0

Other Posts

Instagram Pics

7Jan22  My Christmas card from America came with an official NASA First Moon Landing stamp.  Which I'm keeping.  That was part of my childhood.  #nasa #moonlanding #stamp
6Jan22  It didn't last more than 5 minutes!  They both like sleeping in the chair but Neurmal generally gets there first.  Noble decided he'd try to fit in too.  He didn't like it.  LOL!  #2022pad #catsofinstagram #Iwasherefirst #stopcrowdingme #getyourownseat
7Jan22  Yes!  An American Christmas card!  This was from my son and daughter in love in Texas. #2022pad #belatedxmascard #lovefromafar
22Jan22 I mailed my sister an older iPhone so she can get better hearing aids that work best with the iOS platform. That and she was given an Apple watch for Christmas and needs at least this model phone to make good use of it.  And that was why I had this phone. I bought it to use temporarily with my watch while I waited for a newer phone.  When it came time to sell this phone, I just had a hesitancy I couldn't explain - but I really thought it'd be best suited to go to someone I know and care about rather than a stranger.  And that's exactly what's transpired.  With luck, she'll get it this week!  #sisterlove #iphonegift #betterhearingsoon #sharingthetech #2022pad #latergram
This is my new computer that I hope will help me upload photos more often - and I'm hoping it will help solve neck issues with straining to see the the larger screen I had before now.  #mbp #newcomputer #2022pad
9Jan22  More awards!  I had a perfect week for moving (burning calories) and for getting in 7 workouts in 7 days. #2022pad  #applewatch #fitnessawards #7workoutsin7days

Add a comment if you wish